RESEARCH PROPOSALS

De-identified registry data may be requested by completing a Data Access Form, and be accompanied by relevant ethics committee certification.

Requests from contributing clinicians, staff and academic organisations will be fulfilled without charge.  However external requests will be considered on a case-by-case basis by the AAR Steering Committee and may incur a fee as per the AAR data Access Policy.

For questions please contact us at aar@monash.edu.

Publications and Presentations

  • Revisiting acquired aplastic anaemia: current concepts in diagnosis and management (Clucas et al., 2018)
  • Dr Lucy Fox: Update from the Australian Aplastic Anaemia Registry. MRV National Symposium on BMFS. Melbourne, May 2019
  • A/Prof Zoe McQuilten: DIAAMOND-Ava: Avatrombopag in severe aplastic anaemia – a Bayesian optimal phase (BOP) II trial. MRV National symposium on BMFS. Melbourne, May 2019
  • Dr Tony Mills: Update from the Australian Aplastic Anaemia Registry. HSANZ state meeting, South Australia. Adelaide, August 2019
  • A/Prof Zoe McQuilten: Trial in Progress: Efficacy and Safety of Avatrombopag in Combination with Immunosuppressive Therapy in Treatment-Naïve and Relapsed/Refractory Severe Aplastic Anaemia – the DiAAMOND-Ava-First and DiAAMOND-Ava-Next, Bayesian Optimal Phase II Trials. American Society of Hematology Annual Meeting. New Orleans, December 2022.
  • A/Prof Stephen Ting: Trial in Progress: Efficacy and Safety of Avatrombopag in Combination with Immunosuppressive Therapy in Treatment-Naïve and Relapsed/Refractory Severe Aplastic Anaemia – the DiAAMOND-Ava-First and DiAAMOND-Ava-Next, Bayesian Optimal Phase II Trials. European School of Haematology EBMT Translational Research Conference. Paris, November 2022.

Research Studies

There are a number of studies linked to this registry. Click here for more information.