De-identified registry data may be requested by completing a Data Access Form, and be accompanied by relevant ethics committee certification.
Requests from contributing clinicians, staff and academic organisations will be fulfilled without charge. However external requests will be considered on a case-by-case basis by the AAR Steering Committee and may incur a fee as per the AAR data Access Policy.
For questions please contact us at firstname.lastname@example.org.
Publications and Presentations
- Revisiting acquired aplastic anaemia: current concepts in diagnosis and management (Clucas et al., 2018)
- Dr Lucy Fox: Update from the Australian Aplastic Anaemia Registry. MRV National Symposium on BMFS. Melbourne, May 2019
- A/Prof Zoe McQuilten: DIAAMOND-Ava: Avatrombopag in severe aplastic anaemia – a Bayesian optimal phase (BOP) II trial. MRV National symposium on BMFS. Melbourne, May 2019
- Dr Tony Mills: Update from the Australian Aplastic Anaemia Registry. HSANZ state meeting, South Australia. Adelaide, August 2019