“Banking” is storing health information and/or blood or tissue for future research studies. A “bank” is the place where the health information and/or blood or tissue is stored for future research.  In the future, other doctors and scientists may use these samples to learn about many different diseases and conditions with the goal of improving health outcomes and develop new treatments.

If you agree to participate in this project, you will be asked to donate blood, bone marrow and any one of: hair, nail or oral collection samples, which will be used for genetic research.

These samples are additional to what you would normally have collected in your standard-of-care. However, every effort will be made for these research samples to be collected during your routine visits and procedures.

Participants must meet the following criteria:

1. Have a diagnosis of a bone marrow failure syndrome

2. Be a blood relative of a person with a bone marrow failure syndrome

3. Willing and able to give informed consent

4. Willing to participate in the Aplastic Anaemia and Other Bone Marrow Failure Syndromes Registry (AAR)