Who we are
The Aplastic Anaemia and Other Bone Marrow Failure Syndromes Registry (AAR) is a clinical quality registry that collects health information on patients diagnosed with aplastic anaemia and inherited bone marrow failure syndromes in Australia. AAR is managed by Monash University’s School of Public Health and Preventive Medicine, through the Transfusion Research Unit, which manages a number of other clinical registries for important blood disorders.
Our purpose
The Registry collects data on the diagnosis, treatment and quality of life of patients diagnosed with aplastic anaemia and inherited bone marrow failure syndromes across Australia. The Registry is an important resource that aims to help patients with these diagnoses get the best possible care.
Why participate
Every patient is like a piece of a large jigsaw puzzle – each one gives us only a tiny amount of information, but together, they build a picture. The more pieces of the puzzle we can collect, the clearer the picture will be, and the greater the benefit to all patients. Each patient can make an important contribution to this research.
Latest News
We’re pleased to announce the long-term follow-up phase has recently been added to the DIAAMOND Ava trial. The amendment extends…
Maddie Riewoldt’s Vision and Children’s Cancer CoLab collaborate on funding for research and innovation for young cancer patients.
The first participant has been recruited into the Australian Marrow Failure Biobank (AMFB) at Monash University, supported by Maddie Riewoldt’s…
The AAR receives funding from Maddie Riewoldt’s Vision.
