Latest News
Transfusion Research Unit participates in the MRV National Bone Marrow Failure Syndromes Symposium
The TRU team was well represented at the MRV Symposium, October 2023, with updates on the Aplastic Anaemia and Other Bone Marrow Failure Syndromes Registry (AAR) presented by Prof Erica Wood and an update on the DIAAMOND trial of avatrombopag for patients with severe aplastic anaemia presented by A/Prof Stephen Ting. Professor Melissa Southey provided an introduction to the new Australian Marrow Failure Biobank, which is in development through Biobanking Victoria and will link closely with the AAR.
Over 400 patients entered into the Registry!
The AAR has reached over 400 participants! Thank you to all participants, hospital staff and researchers. We couldn’t have achieved this milestone without your efforts. Your ongoing contribution to a national complete dataset on bone marrow failure syndromes will further advance and support scientific studies of these rare diseases.
The DIAAMOND Trial
The DIAAMOND clinical trial is now closed to recruitment. At close, we randomised 57 FIRST patients and 23 NEXT patients. We extend our thanks and appreciation to the clinicians, participating hospital staff and patients for their support of this important study.
For information about the trial, please refer to the DIAAMOND Trial page or contact us via phone or email
Who we are
The Aplastic Anaemia and Other Bone Marrow Failure Syndromes Registry (AAR) is a clinical quality registry that collects health information on patients diagnosed with aplastic anaemia and inherited bone marrow failure syndromes in Australia. AAR is managed by Monash University’s School of Public Health and Preventive Medicine, through the Transfusion Research Unit, which manages a number of other clinical registries for important blood disorders.
Our purpose
The Registry collects data on the diagnosis, treatment and quality of life of patients diagnosed with aplastic anaemia and inherited bone marrow failure syndromes across Australia. The Registry is an important resource that aims to help patients with these diagnoses get the best possible care.
Why participate
Every patient is like a piece of a large jigsaw puzzle – each one gives us only a tiny amount of information, but together, they build a picture. The more pieces of the puzzle we can collect, the clearer the picture will be, and the greater the benefit to all patients. Each patient can make an important contribution to this research.
The AAR receives funding from Maddie Riewoldt’s Vision.
