Latest News
AAR supports Maddie Riewoldt’s Vision inaugural National Bone Marrow Failure Syndrome Awareness week
Taking place from 3 – 9 March, the campaign aims to raise awareness of Bone Marrow Failure Syndromes and their life-threatening impact, whilst also encouraging Australians to donate blood and stem cells to help save lives. Visit MRV’s website for more information.
New Zealand to join the AAR in 2025
We are looking forward to working with New Zealand sites to open the registry to all New Zealand patients with acquired and inherited bone marrow failure syndromes.
Over 550 participants recruited to the AAR
Thank you to all participants and families, site Principal Investigators and research staff – we appreciate all your hard work and support of the Registry!
Your ongoing contribution to a national complete dataset on bone marrow failure syndromes advances and supports scientific studies of these rare health conditions.
The AAR is grateful for the ongoing funding and support provided by MRV
The DIAAMOND Trial
The DIAAMOND clinical trial is now closed to recruitment. At close, we randomised 57 Newly diagnosed (FIRST) patients and 23 relapse/refractory (NEXT) patients. We extend our thanks and appreciation to the clinicians, participating hospital staff and patients for their support of this important study.
We invite you to review the preliminary results, presented at the American Society of Hematology Annual Meeting 2024 by our CPIs, Prof Zoe McQuilten and Dr Lucy Fox
Professor Zoe McQuilten presenting the preliminary DIAAMOND results at ASH 2024.
Who we are
The Aplastic Anaemia and Other Bone Marrow Failure Syndromes Registry (AAR) is a clinical quality registry that collects health information on patients diagnosed with aplastic anaemia and inherited bone marrow failure syndromes in Australia. AAR is managed by Monash University’s School of Public Health and Preventive Medicine, through the Transfusion Research Unit, which manages a number of other clinical registries for important blood disorders.
Our purpose
The Registry collects data on the diagnosis, treatment and quality of life of patients diagnosed with aplastic anaemia and inherited bone marrow failure syndromes across Australia. The Registry is an important resource that aims to help patients with these diagnoses get the best possible care.
Why participate
Every patient is like a piece of a large jigsaw puzzle – each one gives us only a tiny amount of information, but together, they build a picture. The more pieces of the puzzle we can collect, the clearer the picture will be, and the greater the benefit to all patients. Each patient can make an important contribution to this research.
The AAR receives funding from Maddie Riewoldt’s Vision.
