Rare Disease Day, 28 February 2026

News February 3, 2026

Bone Marrow Failure Syndromes are a group of rare and often life threatening conditions.Rare Disease Day is a global movement...

Newsletters January 7, 2026

The AAR is celebrating a successful year in 2025 and is looking forward to working together with sites in 2026.

News October 27, 2025

We’re pleased to announce the long-term follow-up phase has recently been added to the DIAAMOND Ava trial. The amendment extends…

Newsletters September 16, 2025

The AAR continues to grow,
with over 600 participants
now enrolled across
Australia.

News September 16, 2025

Maddie Riewoldt’s Vision and Children’s Cancer CoLab collaborate on funding for research and innovation for young cancer patients.

News July 16, 2025

The first participant has been recruited into the Australian Marrow Failure Biobank (AMFB) at Monash University, supported by Maddie Riewoldt’s…

News May 24, 2025

Maddie Riewoldt’s Vision held their fourth National Symposium on Bone Marrow Failure Syndromes on Friday 23rd to Sunday 25th May…

News February 17, 2025

Taking place from 3 – 9 March, the campaign aims to raise awareness of Bone Marrow Failure Syndromes and their…

News February 17, 2025

Taking place from 3 – 9 March, the campaign aims to raise awareness of Bone Marrow Failure Syndromes and their…

News February 14, 2025

The AAR has enrolled over 550 participants! Thank you to all participants and families, site Principal Investigators and research staff…